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Human Genome Foundation

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A global non-for-profit foundation (ANBI) with a single purpose: Establish a resolution for ultimate self-ownership over genetic DNA.

The Mission

In 2 years we want to present a new resolution of self-ownership over genetic DNA to the UN and governments across the globe as a fundamental right that needs universal protection. Our mission is to provide self-ownership over genetic DNA and control over who gets access to it, in the hands of every human on the planet. Every person on earth should own their DNA in a reliable and highly secure personal safe that also enables the person to grant controlled access of his/her genetic DNA to people of their choice. To be in control. To have choice. To be able to share their data to accelerate new scientific breakthroughs.

What we stand for

We have written the Universal Declaration of self-ownership over genetic DNA. Striving for a more sustainable and fair planet with less unnecessary disease suffering. Enabling self-ownership over DNA to every human on earth, with the aim of safeguarding the independence of humans and reducing unnecessary disease suffering, providing early stage warning for medical risks, reducing adverse impact and costs.

A global problem

Currently, people do not have self-ownership of their genetic DNA anywhere on this planet. Instead our DNA – the material that makes us who we are, our identity, is stored in isolated repositories of third parties. Firstly, this is threatening our human rights as our DNA is taken over, owned and used by third parties without us knowing it. Secondly, third parties are now earning millions of dollars from selling the DNA, while people do not get any incentive in return. Thirdly, “we have more knowledge than we use”. Because our DNA is stored in isolated and fragmented repositories, knowledge about genetics that can positively benefit lives of millions of people worldwide does not reach the people and the speed of new scientific breakthroughs remains very limited (restricted to local institutes) compared to its full potential. Because of this, millions of people are unnecessarily developing diseases (e.g. avoidable deaths and misdiagnoses); adoption and implementation of personalised medicine remains difficult (e.g. as institutes don’t ‘find’ the people); and a huge amount of money is wasted on inefficient use of resources. Being responsible for billions of dollars per year worldwide.

The ask

Taking part of a movement that will positively influence the health of more than a billion people worldwide. Our foundation is looking for the most inspiring and influential leaders, outstanding genetic experts and engaging writers with a strong sense of justice, fairness and integrity, to strengthen our international task force. Become a founding father of the movement; partner with us; sponsor us to establish the sustainable development goals in achieving the mission, access to the UN and network. Towards a more sustainable and fair world. A better world.

Susanne Baars MSc, MA.

Susanne Baars is a woman on a mission to solving the world’s most deadliest diseases through creating universal access to lifesaving knowledge for all. Susanne is born and raised in a medical family specialized in genomics. From the age of 4, she discovered that millions of people are dying because of a lack of access to available lifesaving information. And that it will take the traditional healthcare industry more than 1000 years and trillions of healthcare costs to connect. Until she realised that there must be a smarter way to fix this! The answer? Using the power of genomics and smart technology to create universal access to lifesaving information for all!

Susanne Baars MSc, MA.

Susanne Baars is a woman on a mission to solving the world’s most deadliest diseases through creating universal access to lifesaving knowledge for all. Susanne is born and raised in a medical family specialized in genomics. From the age of 4, she discovered that millions of people are dying because of a lack of access to available lifesaving information. And that it will take the traditional healthcare industry more than 1000 years and trillions of healthcare costs to connect. Until she realised that there must be a smarter way to fix this! The answer? Using the power of genomics and smart technology to create universal access to lifesaving information for all!

September 2017

Sign Up and join our newsletter today! “Ethics and data storage in an era of personalised medicine” – BASEL LIFE conference, Swiss Go to: https://www.linkedin.com/pulse/patient-data-faster-respect-trust-susanne-baars/Susanne Baars MSc, MA. Susanne Baars is a woman on...

August 2017

Sign Up and join our newsletter today! Interview with Harry Starren, series of the Future of Healthcare. Go to: http://www.cafeweltschmerz.nl/category/gasten-en-interviewers/susanne-baars/ Susanne Baars MSc, MA. Susanne Baars is a woman on a mission to solving the...

February 2017

Sign Up and join our newsletter today! Interview on BNR Newsradio National Dutch radio – We need more data to perform better research and to save more lives. Susanne Baars MSc, MA. Susanne Baars is a woman on a mission to solving the world’s most deadliest diseases...

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"Transforming billions of lives by connecting patients, loved ones and passionate scientists to accelerate medical breakthroughs."
-Susanne Baars MSc. MA.

Made with in Utrecht, The Netherlands.